Speaker List - 4th Annual MarketsandMarkets Orphan Drugs and Rare Diseases Conference

4th Annual MarketsandMarkets Orphan Drugs and Rare Diseases Conference

09th-10th October 2023 | London, UK
CONFERENCE SPEAKERS
Advisors
Lara Haidar
Lara Haidar
Rare Disease Lead,
Sanofi



Pedro Borga
Pedro Borga
Senior Manager, Market Access operations,
Amicus Therapeutics



Speakers
Lara Haidar
Lara Haidar
Rare Disease Lead,
Sanofi



Pedro Borga
Pedro Borga
Senior Manager, Market Access operations,
Amicus Therapeutics



Rudiger Schulze
Rudiger Schulze
Vice President and General Manager, Germany and Central / Eastern Europe ,
Ultragenyx Pharmaceutical Inc.


Rüdiger is a scientist by training with a Ph.D. in pharmacology who has been working in the pharmaceutical industry for 25 years. He held various roles in Sales and Marketing before serving as Business Unit Director in Germany for large pharmaceutical corporations (J&J, BMS). He worked as General Manager for Germany and Central / Eastern Europe for Shire (today part of Takeda) before founding the first foreign affiliate for Ultragenyx, a company exclusively focused on Rare Diseases with a high unmet medical need, as General Manager in 2016. Rüdiger has launched multiple Orphan Drugs in Germany, Poland, and other CEE countries, represented his company in national and international industry associations working groups on Orphan Drugs and has ample experience in pricing and commercializing Orphan Drugs in different health care systems.


Giovanna Barcelos
Giovanna Barcelos
Senior Manager, Value & Evidence Global HEOR (Rare Diseases),
Pfizer



Senior Representative, Takeda
Senior Representative, Takeda
,



 Dairine Dempsey
Dairine Dempsey
Non-Executive Director,
Soleno Therapeutics, Inc.


Dairine is a pharmaceutical industry executive with 20 years experience in the pharmaceutical, biologic and device industries, including 9 years in senior management positions in the Irish Health Products Regulatory Authority (HPRA) working with both the European Medicines Agency (EMA) and the European Commission. She led the establishment of the National Health Regulatory Agency for Pharmaceutical Products in Bahrain and has been involved in the successful global clinical development and post-marketing management of many pharmaceutical products across multiple therapeutic areas, many for rare diseases. She was global Vice President, Strategic Regulatory Affairs at ICON for 2 years before co-founding and successfully leading the start-up phase of Open Orphan Plc, an Irish CRO for orphan drugs. 

She is currently a NED for Soleno Therapeutics Europe Ltd., Omnispirant Ltd. and Reneurx Ltd. and serves on the board of Fighting Blindness as well as providing strategic support to pharma companies focussed on development of a novel therapies for rare diseases. 

Dairine is a pharmacist and holds a PhD in pharmacy and a certificate in international business.


Kristin Smedley
Kristin Smedley
Co – Founder,
Thriving Blind Academy



Katarina Piponi
Katarina Piponi
Pre-clinical Translational Research Associate,
Orchard Therapeutics



Executive Director, Vertex Pharmaceuticals
Executive Director, Vertex Pharmaceuticals
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