CONFERENCE SPEAKERS

Speakers
Victoria Arteaga
Victoria Arteaga
Co-founder,
SHER Hispanic Society for Rare Diseases


Irina Antonijevic
Irina Antonijevic
Chief Medical Officer,
EveryONE Medicines Inc.


Karlie Sharma
Karlie Sharma
Program Director,
National Center for Advancing Translational Sciences, National Institutes of Health (NIH/NCATS)


Benjamin Brown
Benjamin Brown
Co-Founder & Executive Director,
American Society of Pharmacovigilance


Joslyn Arnon Crowe
Joslyn Arnon Crowe
Executive Director,
National Niemann-Pick Disease Foundation


Adrian Kielhorn
Adrian Kielhorn
Senior Director, Global HEOR Neurology,
Alexion Pharmaceuticals, Inc

At Alexion Pharmaceuticals, leadership in HEOR Neurology has been my focus, where I've steered evidence and strategic input for new and existing therapies. My team's dedication to health economics has enabled us to pioneer initiatives that address health equity challenges, particularly for underrepresented communities in rare disease treatment. Among our achievements are developing innovative diversity measures and tackling diagnostic and treatment barriers for people of color.

With a strong foundation in market access strategies from my previous role at EMD Serono, I've successfully shaped the launch and pipeline access for neurology products. The skills honed there, including communication and life sciences acumen, have proven integral to my current responsibilities. My approach is patient-centric, ensuring that the voices of those we serve are embedded in our research and outcomes, which not only advances the science but also aligns with our organizational values and mission.


Arjun Channi
Arjun Channi
Director, Global Regulatory Affairs,
Sanofi


Tara Hastings
Tara Hastings
Patient Engagement Lead,
Sanofi


Elyssa Benedikt
Elyssa Benedikt
Global Rare Disease Value & Access,
Sanofi


Harpreet Ram
Harpreet Ram
President,
EVR Consulting LLC


Neha Kumar
Neha Kumar
Global Precision Medicine Strategy Leader,
Johnson & Johnson


Zia Choudhry
Zia Choudhry
Senior Medical Director Rare Autoantibody Diseases – Immunology,
Johnson & Johnson


Donna (McKenna) Sullivan
Donna (McKenna) Sullivan
Director of Patient Advocacy,
Pathways To Trust